Tag: living with MS

Living With MS – Our Last Dance

My last post highlighted a bridal shower given for my dear niece.  We celebrated the wedding this past week.

How wonderful it was for our family to be together at such a joyful time.

At the reception, music was playing and folks were dancing to all the usual crazy songs, including oldies.  I love to watch everyone dance.  It is obvious you don’t have to be a good dancer, you just get up and dance, do your own thing, and just have fun!

The DJ played a slower song and asked that all couples take to the floor.  As the music started my husband said to me “let’s dance, if you don’t mind me leaning on you a bit”.  So sweet!

He suffers from progressive MS, and he is getting worse as the months and years pass.

Walking is impossible without using a walking stick to steady his balance.

Our marriage has been far from perfect and he has not been the ideal husband, but every single time in my life I needed him, he has been there for me.

During this season of our lives we need one another more than ever.

I can’t see into the future, but with no cure for this disease, I thank God for this special opportunity, and ask Him not to let this be our last dance together.

Cherish special memories and moments in your life, I will cherish my husband leaning on me!

Love to all with a grateful heart.

 

Living with Multiple Sclerosis

In several posts I have shared that my husband Jim, suffers from Progressive Multiple Sclerosis.

Our days together can be so difficult and challenging, filled with overwhelming sadness for me to see what this disease is doing to his body.

Living with Multiple Sclerosis

Diagnosed many years ago, starting with numbness and double vision, the doctors told us that they thought he had a “mild case”, if there is such a thing!  They stated that he would probably not be crippled.

At one point he suffered from extreme, relentless neck and shoulder pain.  His neurologist sent him to the Mayo Clinic for a week of testing, only to be told the pain was due to Multiple Sclerosis.  Jim described the pain, “as if someone were putting a drill to his shoulder and neck”.

As with many episodes of the disease, the pain eventually ended, but the fear that it may return is terrifying to him.

I have decided to post more, from time to time, on what we face living together with Multiple Sclerosis.  I need someone to talk to and I have chosen my blog.

After a bit, no one, not even family members, who love us, can understand the devastating way this disease is taking his body from him.

Can I say I am “Loving my New Simple Life” when my husband is deteriorating little by little every single day?

Believe me, if I had not changed my way of thinking about life, identifying what is really important, love, family, being together, our lives now would be filled with even more unhappiness, depression, and dark clouds.  We do laugh and find joy in being together on most days.

Life is rough, but I knew when I stopped working it was the right thing to do, to be with Jim.

Living with less money, doing without a bunch of extras was hard for me at first, but now it has taught me to love all that I have.

Maybe some of my writings will help others who are living with someone with a physical hardship.

Until the next time, I wish all of you love and courage.

 

Choose Joy!

"Joy" sign!I love this little sign!

When I saw it in a local gift shop I bought it immediately.

My husband suffers from Progressive Multiple Sclerosis, and many days he has issues with cramps, burning, and muscle spasms in his legs.

My thought, when I bought this, was to hang it in the kitchen so when he gets his morning coffee and muffin he sees it and remembers, life can bring us so much joy, even when we are facing difficult times.

My prayer today is that you also remember to choose joy in your life.

Joyful blessing to all!